mEET oUR tEAM
What does the "Estoy Bien" Lupus Awareness Project mean to us?
"Growing up, I saw my mother struggle with lupus, a disease that none of us had never heard of. She went from being super mom, to being unable to get out of bed in the morning to help my brother and I get ready for school. I was fourteen when she passed away. She was 39 years old. This disease completely changed my life. I want to ensure that we develop a community that is comprehensive and aware of the effects that lupus has on those who suffer from it. It is my mission to ensure that people have a better understanding of this disease. I want you to KNOW lupus." - check out her blog.
"There is a stigma surrounding invisible chronic illnesses that often leave patients misunderstood, alone, and silenced. I want to be a part of the movement that takes action against this. The #EstoyBien2017 project allows me to bring awareness to Lupus, an invisible chronic illness that I have been battling with since 2009. Each lupus case is unique, difficult to diagnose and even more challenging to treat. It makes everyday a struggle. It affects more people than you think. I am taking it upon myself to help others understand the emotional, physical, and psychological effects that Lupus can have; not only for the individual, but for those involved in their lives as well."
"My goal with the #EstoyBien2017 project, is to bring awareness to a disease that affects so many people yet few know about. Lupus is considered an invisible illness, so patients often look fine. I hope to shed light on some of the "invisible" symptoms patients face on a day to day basis. I also hope to inspire people with lupus and other autoimmune diseases, to live a full life without limitations. "